22 Oct 2011 by Chris Boughton
My Parkinson’s disease (PD) has attempted to interfere with my study but so far I have the upper hand and I think I have coped with the study workload ok and my brain seems to have woken up sufficiently to deal with the intellectual demands. The biggest problem so far has been finding car parking spaces close enough to the college.
14 Oct 2011 by Meg Pinfield
We have got used to the variety of carers and their irregular arrival times (this initially drove me mad – Ivan was, as usual, un-phased). We have adapted our routine to fit around them. What has surprised and pleased me most is the fact that carers, while they physically care for Ivan, also give me much needed moral support. I have wept on their shoulders after difficult nights, and laughed with them over the little things which can make me scream with frustration. No-one else understands what full-time caring can be like as well as a fellow-carer. We couldn’t be without them now.
07 Oct 2011 by Chris Boughton
Steve Jobs and Apple also had their highs and lows but he never lost belief in himself or his company despite the critical illness he endured for the last 9 years of his life. Coincidently Steve was diagnosed with cancer the same year that I was diagnosed with PD and up until a few months ago he continued to lead one of the most successful businesses in the world and inspire all those around him and most who read about him, despite being a very private man about his personal life.
I have had a few tough PD days this week, probably as a result of the extra demands of attending college. But I feel inspired after listening to the American actor engaging the undergraduates on TV and reading about the life and ethos of Steve Jobs, a truly remarkable man (Steve was 2 years younger than me).