26 Aug 2011 by Chris Boughton
I know there is no cure yet for Parkinson’s disease (PD) or even anything that will slow the progression of my illness, but there are lots that can be done to ease the symptoms and help me to get the best out of my life. Anyway despite my almost obsessional preparation for my visit to the neurologist I do see it as a positive event and it is not something I fear or dread. It is my twice yearly chance to discuss my illness with an expert (my neurologist specialises in PD) and to explore ways of easing the discomfort of the symptoms. There is also an element of optimism in hearing what is going on at the front line of PD research.
17 Aug 2011 by Meg Pinfield
We communicate on many levels, often without words. Sometimes these days we gesture to each other, which helps us by-pass the word blocks. For example, if he needs to move his feet I might just indicate with my hands where he needs to move them. For some reason he can follow this much more quickly than if I spelt it out in words.
15 Aug 2011 by Chris Boughton
I personally find cruises PD friendly and certainly much less stressful than flying. Food is available 24 hours a day which makes pill timing very easy and the cabin is never more than 5 minutes away when I suddenly develop a heavy fatigue attack. Everything is close by – food, restaurants, pools, gym, shops, entertainment and even a library.
05 Aug 2011 by Briony Cooke
When I first developed PD, I was cynical about the value of exercise and preferred to spend my time looking up symptoms on the computer. Before long, I realised that my efforts to conserve my precious dopamine were in fact having the opposite effect; I became progressively stiffer and experienced persistent back-pain
02 Aug 2011 by Chris Boughton
It was going to be a long day for me and Parkinson’s disease (PD) so as usual I planned the day very carefully.