12 Dec 2013 by Chris Boughton
Isn’t it wonderful when you carefully plan something and it all works out pretty much as planned, especially when one of the variables is Parkinson’s disease (PD). I guess the opposite is ‘fail to plan and you plan to fail’. I have just finished two very demanding days at college and although I am very tired I am also very relieved.
06 Dec 2013 by Chris Boughton
I have only missed one lesson so far this semester due to PD, and that is by far the best attendance I have achieved in any semester on this course. I would like to kid myself that this has been achieved because my illness has eased since I started in September 2011, but I know that is not true. My PD, sadly, marches steadily on and my rate of decline is unchanged, but I have learnt more techniques for outwitting it.
03 Dec 2013 by Briony Cooke
The impact of Parkinson’s upon my life has been far-reaching, and has affected my self-image, my skills, my activities and eventually my career. Since my diagnosis the symptoms of Parkinson’s – slowness of movement, postural instability, rigidity and tremor – have progressively limited my physical activities.
13 Nov 2013 by Chris Boughton
There has been much speculation that PD can cause serotonin instability in the brain, which possibly explains some of my low periods, but then just the daily suffering from PD is enough to drag anyone down. However the third year of my BA in English and History is now well under way and I have lots to distract me and, consequently, lots to worry about rather than PD!!
05 Nov 2013 by Chris Boughton
I am not sure exactly where I am going with all this self-indulgent reflection but I think that basically I am looking back positively despite some of the sadness. Parkinson’s disease has radically affected my life over the past 10 years but others have had, or are having, their own battles too.
30 Oct 2013 by Briony Cooke
However, once I was on a stable medication regime my confidence began to return and I started to accept that Parkinson’s was not going to rule my life. I knew that I could not stop the progression, but I would attempt to cope with the infinite challenges it brought. But the most profound improvement was in self-esteem and I stopped seeing myself as a victim.
15 Oct 2013 by Chris Boughton
Charities in the UK currently contribute around £6 million a year towards PD research. However, having just spent two hours on Google, it appears that estimates for the cost of delivering a new drug to market (known as ‘bench to bed’) vary between £80 Million and £8 Billion per drug
07 Oct 2013 by Chris Boughton
I have missed the distraction from Parkinson’s disease (PD) that the course provides. I have also missed the intellectual and social interaction with the other students especially now that my wife, who is a full time teacher, has finished her summer break.
03 Oct 2013 by Briony Cooke
Moving day was memorable for the remarkable amount of stuff we had to cram into two removal vans, the docile cooperation of our many pets and how my Parkinson's did not interfere.
19 Sep 2013 by Chris Boughton
Fatigue is a major feature of my Parkinson’s disease (PD), and it is by far my most disabling feature. These are not just bouts of tiredness: they are episodes of complete bodily malfunction. By no means does everyone with PD suffer in this way but sadly I do and have done so going back to about three years before I was diagnosed.